Start Omhoog Gasten /Geustbook Inhoudspagina

 

Omhoog

 

Website ontwerp:

H van der Avoort.

 

EXTERNAL LINKS

Link: VSOP Since November 1999 we’re a VSOP member (Dutch Foundation of Co-operating Parent- and Patientorganizations concerning hereditary and/or inborn diseases)
Link: PND association The PND association ia a disease organization representing children and families who are affected by a pediatric neurotransmitter disease.
 
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Link: Hersenstichting NederlandHSN

 

Dutch Brain Foundation
Link: NSGK Dutch Foundation for the Handicapped Child.
(De Nederlandse Stichting voor het Gehandicapte Kind)

 

Cliniclowns
(A Dutch foundation who visits diseased or handicapped children, e.g. in hospitals, aiming to ease and distract the children a bit)
Link:  Vereniging BOSK Belgian Association for Parents of Children with a Metabolic disease
Link: Gehandicapten pagina.nl Search engines, cooperating with startpagina.nl
Link: Amphia Ziekenhuis (nieuwe naam voor Ignatius ziekenhuis) Dr. De Rijk-van Andel is working at this hospital as a pediatric neurologist. Here the first patients were diagnosed and treated with dopamine.
Link:  UMC St Radboud Thanks to the laboratory in this academic hospital (Metabole Centre Nijmegen) brain fluids can be tested on the existence of THD.
Link: Vereniging VKS Dutch Association for Children with Metabolic Diseases
(Site partly In English)
(Vereniging voor Kinderen met Stofwisselingsziekten)
Link: np/cf The Dutch Patients/Consumers Federation (NP/CF) is a national co-operation of patients- and consumers organizations. The Federation wants to increase patients / consumers influence on national healthcare.
(De Nederlandse Patiënten/Consumenten Federatie)
Link: Parkinson vereniging The Parkinson Patients Association was founded on December 10th 1977, purposing on the one side expanding the knowledge of Parkinson's Disease and making people understand the persons that suffer from it, and, on the other hand, giving the patients a possibility to make contact with other patients; to pass on information, to organize activities, to offer a basis for mutual support and encouragement.
Link:  Handicap en advies Responsible for the translation of several of the foundation's documents from Dutch to English.
Link: Hulphond.nl Foundation 'Stichting Hulphond Nederland' trains dogs especially for the physical handicapped, people who are or aren't tied to a wheelchair and for people who are deaf or blind.
Link: Jostiband Jostiband
(Site In English)
CNH Foundation Care Net Holland (CNH) ; information-exchange within Dutch healthcare organizations
Leefwijzer On May 25th 1999 the Dutch Minister of Health Issues E. Borst-Eilers launched a new internet site for people with a chronic disease and/or handicap. The site is called 'Leefwijzer' and can be found on www.leefwijzer.nl.
To the opening of the site contributed among others: author Renate Dorrestein, olympic wheelchair tennisplayer and Sportswoman of the Year Chantal Dierendonk, former minister Til Gardeniers, author Karen Spaink and singer Koos Alberts.The site is an initiative of the National Committee of Chronic Diseased in Zoetermeer.
 
Do something big with your small money.
http://www.coinsforcare.nl/
http://www.nederlandvoorhetgoededoel.nl/
WOS, Wings Of Support.
Zonneschijnkinderen. (Sunshinekids)
On this site you see a link "MINDERVALIDE KINDEREN" where you  can find a lot of related topics.
Childlinks
 
Translation from Dutch to English by Anita Nijhof.